Navigating Back to School with Hidradenitis Suppurativa: Tips for Teens
by Dr. Donna Atherton, Editor-in-Chief
As summer draws to a close, teens across the country are preparing to head back to school. For most, this is an exciting time filled with anticipation for new classes, reconnecting with friends, and participating in extracurricular activities. However, for teens living with Hidradenitis Suppurativa (HS), the start of the school year can bring about unique challenges and anxieties.
Hidradenitis Suppurativa, a chronic skin condition characterized by painful lumps and abscesses, often in areas where skin rubs together, can make the school experience particularly daunting. The physical pain and emotional burden of managing HS can be overwhelming, especially in a school environment where teens are already navigating the complexities of adolescence.
1. Understanding Hidradenitis Suppurativa
HS is a condition that goes beyond typical teenage skin issues. It's not just about dealing with acne or occasional breakouts. HS involves recurring painful lesions that can cause discomfort, scarring, and even lead to feelings of embarrassment or isolation. Understanding that HS is a medical condition and not something that can be easily controlled is the first step in managing it effectively.
2. Communicating with Teachers and School Staff
One of the most important things teens with HS can do as they prepare for the new school year is to communicate with their teachers and school staff. It can be helpful to explain the condition, how it affects their daily life, and what accommodations might be needed. For example, a teen might need extra bathroom breaks, permission to wear loose-fitting clothing, or understanding from physical education teachers about their limitations during activities.
Parents or guardians can assist by providing medical documentation and working with the school to ensure the necessary support is in place. This proactive approach can help reduce stress and make the school environment more comfortable.
3. Building a Support Network
Returning to school can feel isolating for teens with HS, especially if their peers don't understand what they're going through. Encouraging teens to build a support network of friends, school counselors, or even online communities can make a big difference. Having someone to talk to who understands their experience can alleviate some of the emotional burdens and provide a sense of belonging.
4. Managing HS Day-to-Day
Daily management of HS is crucial, especially during the school year. This includes maintaining a consistent skincare routine, wearing appropriate clothing, and having the necessary supplies on hand, such as bandages or pain relief. Teens might find it helpful to pack a small kit in their backpack with supplies like bandages or pain relief that they may need throughout the day.
It’s also essential to listen to their body. If a teen feels pain or discomfort, they shouldn’t push themselves too hard. Taking time to rest or seek help when needed is important for both their physical and mental well-being.
5. Practicing Self-Compassion
Living with HS can be tough, and it’s easy for teens to feel frustrated or down about their condition. Practicing self-compassion is key. Remind them that HS does not define who they are and that they are strong for managing it day in and day out. It’s okay to have tough days, but it’s also important to celebrate the small victories—whether it's making it through a tough school day or finding a new way to manage symptoms.
6. Focusing on the Positives
While HS presents challenges, it’s important to focus on the positives as well. School is a place for learning, growth, and social interaction. Encourage teens to engage in activities they enjoy and to pursue their passions. Building confidence in other areas of life can help reduce the emotional impact of HS.
7. Seeking Professional Help
If a teen is struggling to cope with HS, either physically or emotionally, it’s essential to seek professional help. A dermatologist can provide medical treatment options, while a counselor or therapist can offer strategies to manage the emotional side of living with a chronic condition. Don’t hesitate to reach out for the support that is available.
Conclusion
Going back to school with Hidradenitis Suppurativa can be challenging, but with the right strategies and support in place, teens can navigate the school year with confidence. By understanding their condition, communicating with teachers, building a support network, and practicing self-compassion, teens with HS can thrive both academically and personally. Remember, HS is just one part of their life, and with the right tools, they can overcome the challenges it presents and focus on achieving their goals.
