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SKIN AND SOUL HEALING!

At IAHSN, we are committed to advocacy, education, and whole-person well-being, because living with Hidradenitis Suppurativa (HS) is about more than managing flare-ups. It involves navigating trauma, processing grief, rebuilding confidence, and overcoming isolation. Through patient-centered advocacy, educational resources, and compassionate, trauma-informed support, we empower individuals living with HS to care for both their physical and emotional health. You are more than your diagnosis, and you do not have to face this journey alone.

Learn About Hidradenitis Suppurativa

It's easy to think of hidradenitis suppurativa as just a "skin condition." But hidradenitis suppurativa actually starts underneath the skin. It is a chronic (long-lasting) disease of the autoimmune system that can range from mild to severe. Learn more

Treatment and Doctors

It is difficult to control hidradenitis suppurativa with medical treatment. The best approach is to catch the disease in its early stages, and treat and control milder symptoms of the disease. Find out more.

Connect with Others

If you're living with hidradenitis suppurativa, you're not alone. The HS Foundation estimated between 1%-4% of the world's population suffers HS. The numbers equate to between 74 million and 296 million people worldwide. This is your opportunity to be connected with a group of other people living with hidradenitis suppurativa on Facebook. Read more.

Our Impact This Year

People Helped

1423
Volunteer Hours

3783
HS Speaks

5
Rx Supplies

100 Care Bags

April 6, 2026

Simple Ways You Can Help End Homelessness

Today, we’re going to go through some simple, tangible ways you can help put an end to homelessness in your community.

March 23, 2026

Spring Cleaning: Cool Ways to Donate Used Items

If you’re looking for cool ways to donate your gently used items, check out this list of things you can and should donate, and some unique ideas of where to give them.

March 17, 2026

Is HS Genetic? What Research Says

HS can run in families, with about one-third of people reporting a family history. However, it’s not purely genetic—other factors like inflammation, hormones, and environment also play a role. Having a family history may increase risk, but it does not guarantee HS.

FAQs

Dr. Donna Atherton, Founder and Chief Mission Officer

“IAHSN is dedicated to improving the lives of individuals with Hidradenitis Suppurativa by focusing on the intersection of skin health, mental health, and community support.

We empower people with HS through education, emotional wellness, advocacy, and storytelling, offering a compassionate space to heal from both the physical and emotional scars of this chronic skin condition."

Privacy Policy

What Information Do We Collect? When you visit our website you may provide us with two types of information: personal information you knowingly choose to disclose that is collected on an individual basis and website use information collected on an aggregate basis as you and others browse our website.
Personal Information You Choose to Provide We may request that you voluntarily supply us with personal information, including your email address, postal address, home or work telephone number and other personal information for such purposes as correspondence, placing an order, requesting an estimate, or participating in online surveys. If you choose to correspond with us through email, we may retain the content of your email messages together with your email address and our responses. We provide the same protections for these electronic communications that we employ in the maintenance of information received by mail and telephone.
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Notice of New Services and Changes Occasionally, we may use the information we collect to notify you about important changes to our website, new services and special offers we think you will find valuable. As a user of our website, you will be given the opportunity to notify us of your desire not to receive these offers by clicking on a response box when you receive such an offer or by sending us an email request.
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How Do We Protect Your Information? Information Security -- We utilize encryption/security software to safeguard the confidentiality of personal information we collect from unauthorized access or disclosure and accidental loss, alteration or destruction. Evaluation of Information Protection Practices -- Periodically, our operations and business practices are reviewed for compliance with organization policies and procedures governing the security, confidentiality and quality of our information. Employee Access, Training and Expectations -- Our organization values, ethical standards, policies and practices are committed to the protection of user information. In general, our business practices limit employee access to confidential information, and limit the use and disclosure of such information to authorized persons, processes and transactions.
How Can You Access and Correct Your Information? You may request access to all your personally identifiable information that we collect online and maintain in our database by emailing us using the contact form provided to you within the site structure of our website.
Do We Disclose Information to Outside Parties? We may provide aggregate information about our customers, sales, website traffic patterns and related website information to our affiliates or reputable third parties, but this information will not include personally identifying data, except as otherwise provided in this privacy policy.
What About Legally Compelled Disclosure of Information? We may disclose information when legally compelled to do so, in other words, when we, in good faith, believe that the law requires it or for the protection of our legal rights.
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